Advocacy 101

How We Talk at Family to Family: Words are Powerful

Why We Don't Say "Special Needs"

There are many children with other needs, like poverty, hunger or homelessness.  While we sometimes help families find those basic needs, Family to Family Network’s primary mission is to help families navigate the world of disability:

  • For education – Individuals with Disabilities Education Act (IDEA)
  • For long term services – Formally provided by Dept. of Aging & Disability Services (DADS), now by the Health & Human Services Commission
  • For post secondary – Office of Disability Services at university/college
  • For employment – Dept. of Labor Office of Disability Employment Policy

The only place you will see us use the term “special needs” is in referring to a type of trust you set up for a child with a disability.

Why are you using the word “special needs” when you refer to your child?
What does that imply? How does it make people feel when you use it?
If it is pity – we don’t want that for your children or any other person with disability. 
Let’s change how we speak about people.

Read More here:

“When Special Isn’t So Special” 
by Leslie P., Texas Project FIRST

The disability rights movement started in the 1970s. In 1976, PL 94-142 was enacted to include children with disabilities in the public education system for the first time. People First Language began to evolve…

• In 1990, the Senate Subcommittee on the Handicapped became the Senate Subcommittee on Disability Policy.
• On July 26, 1990, The Americans with Disabilities Act, PL 103-336, was enacted, prohibiting discrimination based on disability in employment, public service, public accommodations and telecommunications for the more than 43 million adults and children with disabilities in the U.S. (Notice it was not called the Handicapped Americans Act!) – This was reauthorized again in 2007.
• In late 1990, PL 94-142, The Education of All Handicapped Children Act, was reauthorized and renamed by Congress to become PL 103-476, The Individuals with Disabilities Education Act (IDEA) and then reauthorized again in 2004, The Individuals with Disabilities Education Improvement ACT (IDEA).

Isn’t it all great?!

But we still have a long way to go!

Now it’s our turn…time to change the language used to describe children and adults with disabilities.

People First Language

A disability has been defined as a body function that operates differently. It’s that simple!
People First Language seeks to put the person first and the disability second! People with disabilities are people, first and foremost!

Persons with disabilities want the same things all of us want.
We all want: dignity, respect and the opportunity to participate fully in what life has to offer. Those achievements are hard to attain when one’s whole being is defined by a label.  Traditionally, our society has not expected much from a person with a label. This is changing now, for people with disabilities are more like people without disabilities than they are different!
A disability is only one unique aspect of the sum total of a unique individual!

A disability label is:
* Just a medical diagnosis
* Doesn’t tell you much
* Is NOT the person
* Is a Passport to services…..Nothing more!

Note:  Individuals with disabilities may refer to themselves however they choose; yet as family & community members, we need to treat them with respect and dignity by using people first language.  

People First Language To Use

  • People with disabilities
  • People with intellectual disabilities or he has a cognitive disability
  • My son has autism
  • She has Down Syndrome
  • She has a Congenital disability
  • He is a person with a seizure disorder
  • He uses a wheelchair
  • She has a developmental disability
  • He has an orthopedic disability
  • She has short stature
  • He has no speech
  • She has a learning disability
  • He is a person who has….
  • She has an emotional disturbance
  • Typical instead of “normal”
  • He has quadriplegia, paraplegia, etc….
  • She receives Special Ed Services
  • Accessible bathroom or parking

For more information please use these resources:

Disability Is Natural by Kathie Snow – The #1 Source for People First Language and new ways of thinking about disability. (see especially – The Case Against Special Needs)

NOTE:  People with disabilities may refer to themselves in any way they prefer….but as family & community members, we need to treat them with respect and dignity by using people first language.  

Describing People With Disabilities – Texas Council for Developmental Disabilities (in espanol)

Person First Respectful Language brochure (pdf) – Dept. of Aging and Disability Services

People First – What is PF, History, Philosophy

Inclusion Fairy Flitter-Flutter (pdf) by Debby H.

“Why Inclusion Begins In Kindergarten” “Por Qué La inclusión comienza en el kinder” by Charlene Comstock-Galagan on our Texas Project FIRST site

Inclusive Education:  From Political Correctness to Towards Social Justice (youtube) – Norman Kunc speaks to education experts in the field about inclusion.

I Am Tyler – A young man with a disability tells about how people assisted him throughout school….and the importance of “Ability Awareness”. (video)

Label Jars Not People
This website uses cookies and may ask for your personal data to enhance your browsing experience.